Careers at Children's Cancer Institute
Data Manager

Children's Cancer Institute  
Employment Type:
Full-Time Fixed Term  
Personalised Medicine (PM)
Supporting Documentation:

  • Innovative, collaborative and positive team-orientated environment
  • Modern, world-class facilities
  • Convenient Randwick location, close to transport
  • Flexible working options
  • 3 year contract


The ZERO Childhood Cancer National Personalised Medicine Program (ZERO) is Australia’s first and most comprehensive personalised medicine program for children and young people. A unique, multidisciplinary program bringing together cutting-edge science, the latest technology, and the brightest minds in research and clinical care, it is on a path to change the model of care for children with cancer today. Having already demonstrated significant impact in improving the lives of children faced with the most challenging prognosis, the program is now in preparation to expand and grow to include all Australian children and young people with cancer by 2023.

This newly created position will report to the ZERO Program Leader, and work closely with other key relevant CCI teams, including Risk and Strategy Implementation, Technology Services Group (TSG) and Computational Biology (CB). The ZERO Data Manager will be responsible for overseeing the effective management of the increasingly large and complex datasets generated by the ZERO program. This role will involve managing, coordinating and implementing any necessary processes to ensure compliance and alignment with the organizational data management and governance frameworks.

The ideal candidate will have experience in managing numerous large and complex datasets, with a strong understanding of databases, genomic data, hospital data including protected health information (PHI) data, and data privacy and protection issues. This role will also be responsible for streamlining data migration and data tracking activities for these large, disparate data sets, from multiple sources such as the cloud and HPC environments, towards enabling the integrative analysis of this data by biostatisticians and other researchers.


Responsibilities will include, but are not limited to:

  • Working in collaboration with the CCI Chief Information Officer and Data Governance Committee in delivering and managing the data governance strategy and framework across the personalised medicine theme at CCI.
  • Establishing and implementing program procedures for the storage and retention of research data and records within the personalised medicine theme.
  • Maintain data frameworks, business rules, data dictionaries, policies and procedures in alignment with CCI’s data governance framework for the capture, management, dissemination and manipulation of the organisation’s data, driving their adoption
  • Ensure that business processes and procedures are aligned with the Data Governance Policy and Research Data Management Function Policies
  • Maintaining a register of the establishment and ownership of databases and data repositories containing confidential information within the personalised medicine theme.
  • Ensuring effective local protocols are in place to guide the appropriate use of data and materials
  • Responsible for ensuring that all legal, regulatory, and policy requirements are met in relation to the specific data and that the data and materials conform to legal, regulatory, exchange, and operational standards
  • Ensuring that the process for the administration of data and material is in accordance with the Research Data Management Lifecycle
  • Responsible for the quality, integrity, implementation, and enforcement of data management within the personalised medicine theme.
  • Develop a Data Register outlining data storage and access plans for the management of any data generated within the ZERO program.


Qualifications, experience and skills required:

  • Relevant tertiary qualifications in a data related discipline (e.g. computer science, bioinformatics, information systems, eHealth, statistics, mathematics, health sciences or other relevant discipline)
  • Relevant post graduate qualifications and/or extensive relevant experience in Data or Information Security Governance and Compliance.
  • Formulating management techniques for quality data collection to ensure timeliness, adequacy, accuracy and legitimacy of data
  • Demonstrated experience in policy and guidelines development
  • The application of privacy protection principles, with regard to sensitive personal information
  • Understanding of linked administrative data systems, with knowledge of clinical health data being desirable
  • Implementing and enacting policies for effective data management
  • Providing expertise on data collection, analysis and reporting
  • Excellent stakeholder management skills and interpersonal skills
  • Strong professional written and oral communication skills
  • Previous experience in health or medical research is highly desirable


This is an excellent opportunity to work in an inspiring workplace. You'll be rewarded with a friendly and professional flexible work environment, comprehensive on-campus facilities, competitive salary, salary packaging options, access to a leading EAP program and regular social activities. Join a group of dedicated people in a performance-driven environment to achieve success and discover what it's like to look forward to coming to work every day and make a real difference. We're looking for people who share our values of accountability, integrity and camaraderie, teamwork, sharing and excellence, success and satisfaction.

A detailed job description and additional information about Children's Cancer Institute can be found on our website at: . We embrace diversity and encourage applications from people from diverse backgrounds and cultures.

To apply, please click the 'APPLY' link and forward both your resume AND cover letter (mandatory) clearly addressing the qualifications, experience and skills required.

Note: Applications will be reviewed prior to the closing date; which is dependent on the status of the recruitment process. Only successfully shortlisted candidates will be contacted.